sickle cell disease

Most states don’t have basic information like the number of sickle cell patients, the counties where they live or the type of health insurance they have. This means these patients’ needs aren’t taken into account when it comes to federal and state-level public health planning and budgeting. Indiana is one of 11 states participating in a program to change that.

Sickle cell disease is a genetic disorder that affects nearly 100,000 people in the U.S. It’s the nation’s most common genetic disorder, but is often overlooked when it comes to resources. The vast majority of people with sickle cell disease are Black. Researchers, physicians and patients believe these disparities exist — and persist — because of systemic racism.

Increasingly, sickle cell anemia patients in the U.S. are moving away from blood transfusions and instead using a medicine called Hydroxyurea to control…

Cincinnati Children's is partnering with the Swiss company Roivant on a new venture called Aruvant Sciences, a biopharmaceutical company focusing on…