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Health

Local Mother Launches Movement To Cure Duchenne Muscular Dystrophy

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Hundreds of Duchenne community members gather in the U.S. Capitol for Parent Project Muscular Dystrophy’s "End Duchenne" rally.";

It is the most common fatal genetic disorder diagnosed in childhood, affecting approximately one in every 3,500 boys worldwide. When Pat Furlong's two sons got the diagnosis she began a mission to learn everything she could about Duchenne muscular dystrophy.

In 1994, she founded Parent Project Muscular Dystrophy with a group of parents and grandparents to accelerate research, get the attention of lawmakers and ensure patients have access to the best care. Furlong's sons passed away in their teenage years, but she continues her work in their honor by fighting for all families affected by Duchenne. 

Here to discuss Parent Project Muscular Dystrophy and current research strategies are Parent Project Muscular Dystrophy President and CEO Pat Furlong and Senior Vice President of Research and Strategy Abby Bronson.